Wow, so much to recap. I haven’t been in a writing mood as of late, which is uncharacteristic of me. As of late I have been incredibly fatigued so any free chance to just zone out and rest is usually spent in front of Netflix or a book.
This is VERY late but I first want to talk about the trip that I took to California a couple weeks ago to visit my brother and his “west coast family”. I was in San Jose for 5 days and I would say that it was the most relaxed and zen I have been in months. My brother, his beautiful girlfriend Lacey, and his friends went out of their way to make sure that I had the best experience possible. I felt like an absolute princess.
Adam’s house, first of all, is gorgeous. I am so proud of this milestone in his life. Also- check out this guest room! (deco credit actually goes to his girlfriend since Adam may or may not have had a minor Bed, Bath and Beyond meltdown)
We really packed in the activities! Adam was sure to take Lacey and I to one of my favorite restaurants in Capitola, Shadowbrook Restaurant. As seen below (in a picture borrowed from the Shadowbrook website) the restaurant is situated on a steep hill and there is a cable car that can take you down to the restaurant. The food is amazing and we feasted on lobster, scallops, steak, and wine. We were also laughing so hard the entire night (mostly due to my brother’s corny temperature jokes) that we were incapable of taking a normal picture.
In addition to an extravagant dinner I was also treated to club seats at the Giants v. Cardinals game the next day in San Francisco (thanks to Lacey’s company). The weather was beautiful and we had a blast together. I cannot imagine a more beautiful stadium. Baseball to your left, sailboats to your right, hot dog down the gullet.
The next day was pretty laid back. Adam’s adopted family Tina and Sumi hosted a seafood boil at their house. So the vast majority of the day was spent lounging in the pool and eating our weight in crab, shrimp, corn, potatoes, and other delights.
My last full day was sadly spent without my brother since he was busy being a star athlete/drunk person babysitter at a charity golf tournament. His girlfriend was kind enough to take the day off from work to keep me company. I’m pretty sure our terrific lady day surpassed Adam’s golf tourney. We had lunch, got massages, and had a glass of vino in an open air wine bar in Santana Row. Lacey made sure that my last day was entertaining and memorable. I don’t think I stopped laughing the entire day.
All activities aside some of my favorite parts of the trip were simply spending silly moments with my brother whether it be driving in the car or watching garbage tv in our jammies. We live over 3000 miles apart but our relationship as siblings is always loving and steady. The majority of our time was spent joking, laughing, and watching old WWF Royal Rumbles from the 1990’s (no joke- amazing). I will admit I had one small vulnerable moment when I was reflecting on my health challenges and Adam stopped, gave me a bear hug, and reassured me that I was doing better than I feel I am in the moment. I couldn’t ask for a better sibling, friend, and personal comedian.
I want to thank EVERYONE on the west coast that came out to visit, took time out from their busy schedules for outings, and made sure I was happy and comfortable.
Coming home was challenging. Internally I left Adam’s car and entered the San Jose airport kicking and screaming.
The weekend following vacation was another busy one. Sam Favata (my longtime friend, Cory’s Sigma Nu brother, and the person responsible for introducing me to Cory) married his college sweetheart, Alicia. The wedding was a blast! Alicia and Sam couldn’t possibly look happier. The music was amazing and as a result my feet were super swollen the next day from endless dancing.
Congratulations Favata fam! I hope you are having a blast in St. Lucia!
So enough about recent activities. As you may remember from my previous entry my last blood test results were disappointing. Honestly, it upset me and I felt pretty down. It resulted in a frank conversation with my oncologist about expectations. The long and short of it is that I will be in some sort of treatment for the long haul. It doesn’t look like there will be an end to chemo anytime soon.
I had another blood test when I returned form Calfornia and not surprisingly (to me) it increased again. My last recorded CA-125 was 777.
So the CA-125 was again not the most favorable but still didn’t go up enough to sound off any major alarms. We will stay the course with this treatment and only scan if it increases enough to cause concern for a third month in a row.
As my brother has reminded me- I cannot be a slave to the numbers and there are roughly a million reasons why it could have increased including the week off from chemo that I had for vacation (which I think was MUCH better for my soul and quite necessary). Again, disappointing news but it wasn’t my undoing this week. Let’s just hope for some sign, ANY sign, that we are moving in the right direction next month.
Other than test results I can report feeling extremely tired all the time. Much can be attributed to a combination of chemo, a high-volume time at work, travel, and what not. Every day this week (except for last night) I passed out on the couch for at least an hour after work before I could even make dinner. Last night I had steroids in me (a Taxol pre-drug) so I have unfortunately been awake for 26 hours and counting…
Everyone cringes when I talk about my fingernails but they are still incredibly sore. It can be best described as similar to the feeling of “the aftermath” of shutting your fingers in a drawer. What has helped tremendously is nightly soaking my nails in warm salt water, keeping them painted to hide the disgusting discoloration, keeping them short so they don’t catch on anything, and wearing rubber dish gloves while I wash dishes or clean my apartment. So far I have all 20 nails in tact. Fingers crossed, they stay where they belong.
2015 NOCC Walk:
We are 15 days away from the 2015 National Ovarian Cancer Coalition walk in Roger Williams park, Providence, RI. So far, thanks to your love and generosity, I have raised $1070 dollars!!!! This is amazing.
I also have an amazing team for the day of the walk. Thank you to those that have signed up so far: Stack Goldman, Michelle Fabs, Sarah Breen, Emily Nason, Kelly Blessing, and Brian Eastman! It is not too late to join this rag-tag group of misfits! If you would like to walk with us on Sunday, September 27th at 9:30am there is still plenty of time to sign up online through my donation page.
To those of you that have donated or shared my donation page, my heart is VERY full. Thank you SO much for your kindness. You have no idea how your donations will help to improve the lives and care of women like myself.
I hope everyone has a great week 🙂