I saw Dr. Robison on Monday (thank you to Katie for joining me for moral support at 7:30am!). She elaborated a bit about what they saw on the CT scan. There is what she described as “studding” meaning small nodules of disease on parts of the abdominal living, liver, and lining of one of my lungs. Due to the location of the measurable disease, surgery is not an option. It is not safe therefore, inoperable. That officially qualifies me for a trial chemo offered through Mass General with Dr. Dizon (my adorable, ascot-wearing, ray of sunshine). We will try the trial first and if it does not work we will rely on some other options such as Avastin (an infusion) or go back to traditional chemotherapy. I do not know what the trial involves, how often I will have to go to Boston, or what the side effects are. I will learn all about that on Friday. My homegirl Sarah kindly volunteered to take the day off on Friday to be by my side for this appointment (though secretly I think she just wanted to witness the adorableness that is Dr. Dizon and his festive fashion). Over the weekend I will be sure to update you on what I know regarding this chemotherapy.
Upon receiving this news I was initially rattled by the word “inoperable”. It just sounds so grim when you hear it out loud. Luckily the measurable disease, though in more than one area of my body is small and slow growing so those are two facts in my favor. I am choosing to take this as a sign from the universe that we are not turning to surgery because physically, I am tired. I’m still recovering from the last one. This is the universe cutting me a break. Thanks universe? (You mysterious bastard).
Thank you for the continued support and love. I need every ounce of your positivity.
You got that right …it is a mystery…but one that will be solved! Let the universe ,with all of it’s infinite wisdom, be your guiding light. Right there with you to slug it out. Love, Mom
Hi Jess, sending love and hugs from our family to you and your family. Let your fashionable Doc figure this out (as I’m sure he will) while you go on with your plans to be with family and travel. Prayers and positivity coming your way as always!
Judy and John Galiney
Hi Jess, Sending you lots of love and hugs from our family to you and your family. Trust in your fashionable Doc to figure this out,as I’m sure he will. Hope to see you soon. Mom and Dad Galiney
To Jessie. You are far stronger than this Beast. I read it in your words. You have a Team of Soldiers following you. If you need rides to Boston. If you need a comedienne to help you through this. I would LOV e to help you. I know that clinic very well. Along with its team members I’m sorry to say. I want to make you a cape with a huge S on it for in my eyes you epitomize a superwoman. We are not close. Having only met this past year – but I am a soulmate of all women. I smell your pain. Yet we all See how strong you are. A valiant fight is what we shall all give and take. Peace my fellow sister. Love Lou
Jess put those fists up high and fight like the fighter you are! Nothing can beat you. YOU amaze me with all that you have endured. Go get em! I have some boxing gloves you can use. Love you! Tricia
Jess, you are an amazing woman with a unbelieveable group of doctors who will do whatever is possible to make this work for you, so I will send lots and lots of positive energy your way. You inspire me EVERY DAY. Love and hugs,
Stay strong. You are in my prayers.
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