I have been really neglecting the blog. I’ve been busy living my life and not really thinking about cancer. Last Friday I went to the doctor and had my usual blood test to check on my CA-125. Unfortunately the results weren’t favorable. My CA-125 is about 385. Just as a benchmark it was in the high 90’s prior to the surgery I had in December. Yesterday’s CT scan reflected the presence of fluid and possible nodules/small masses in or around my diaphragm and liver Needless to say, I’m annoyed.
When I last saw Dr. Dizon he helped me to reframe my illness as a chronic condition. I’ve become accustomed to thinking about it in a gray sense instead of black and white. Although I was expecting for the cancer to “come back”, I at least thought that after the intensive surgery I had in December that it would stabilize for a few months…or years. I thought wrong.
I see doctor Robison on Monday and hopefully I will have a little more information about how we plan to proceed next week. Although there is a lot to be nervous about, in reality my health is no worse or no better than I realistically expected (at least once I knew that my CA-125 was elevated).
In more exciting news we raised over 1200 dollars for the National Ovarian Cancer Coalition at the Alex and Ani fundraiser I hosted back in February. Thank you to everyone that participated, donated, volunteered and took the time to attend!
In even more exciting news Tony (from www.effleukemia.com), my brother, and I are heading to Las Vegas in two weeks!!
I will be better about posting in the blog when I have updates. Until then, I’ll keep hoping for the most ideal outcome of a mildly sucky situation (<– It’s amazing how devastating news becomes “mildly sucky” news when managing cancer becomes your new normal).
Jess – Know prayers are with you, even from friends you do not know. With love and with prayer for a full recovery – Delores
My prays are with you, Now with that done with, have a great time in Vegas!!!
I’m pissed at this Beast we call ovarian cancer. It’s unfair that he gets to chose. God bless you all. You have the strength and wisdom of a gladiator miss Jessica sultaire. I admire you everyday. I admire your family. For they took have the strength of Zeus and his world. I shall pray for PEace for you. Cyndilou
Hi Jessica: I have been following your blog and want you to know you are in my prayers. I hope Vegas is everything you hoped it would be. I know Tony is looking forward to going with you and your brother. It’s just a beautiful day here in NY. I wish you all the best. Kathleen (Tony’s Mom)
I I send you love and healing! A kindergartener guessed my age as 16. Anything is possible, Jess!
Hey tough cookie. Fuck this cancer. That’s all I have to say. That, and I love you 🙂
You are in our thoughts and prayers daily, you are a strong young women and you can kick this in the butt. You are an inspiration to me and alot of people. God Bless ❤
Dear Jesse ~ I look forward to meeting you some day!!! You are an inspiration to me and many others. Enjoy Vegas & come back renewed & strong. You can kick this again & you will !!! Will continue to keep you in my prayers!!! God Bless You!!!
just want to send you some love sweetheart