Give me some credit where credit is due. Technically I made it through the holiday without a total disaster. I was; however, admitted to the hospital the day AFTER Thanksgiving.

Not totally surprising, a CT scan revealed that the pain in my abdomen is attributed to yet another bowel obstruction. They don’t see a mass around the area that is obstructed so they aren’t totally sure as to why the intestine is kinked up. 

As I mentioned briefly in the last post, I have had some abdominal pain since Monday so I put myself on “bowel rest” and only took in clear liquids like juice and broth. On Thanksgiving I did go back to solids in very small portions but I suspect it was a bit too soon. The pain increased that evening and the following morning I had a few episodes of vomitting. We knew at that point that it was time for the hospital. My incredible parents packed up and drove the 2+ hours to Women and Infants so I could be at a hospital where they know me (and my super complicated body).

I’ve been here since Friday and cannot take in food or drink by mouth. I have an IV keeping me hydrated. They want to place an NG tube but because it has been difficult to place in the past we need to wait until we can do it at Rhode Island Hospital with imaging.

All I can say for now is that they’re keeping my nausea under control with round the clock Phenergan and treating the pain as needed through the IV. The meds make me pretty sleepy so aside from reading a lot and a little TV I’m sleeping quite a bit. That said, I just ask that any visitors call or text before they come. I’d hate to be a sleepy during a visit! All things considered, I’m not in bad spirits at the moment.

That’s all I have for now. I’ll keep you posted when more information comes to light.

Thanks to everyone that has called or dropped a line to check in 💜

(P.s. props to Sarah Breen for making a florist have to write “bowels suck” on a card) 

My life with cancer began exactly four years ago. I’d like to think that in reflection of everything we have overcome in the last four years I’d be in a place to articulate some passionate battle cry but I’m just not there today. Maybe tomorrow, or next week, or next month, but the past few weeks have simply worn me down.

Although I’m feeling much more positive today than I have in recent days, I can safely admit that I’ve had a steady case of the Eeyore’s.

Early fall I was just feeling some welcome momentum, like I was hitting my stride again. Unfortunately, because cancer doesn’t really give a crap about your personal priorities, a string of challenges started to creep up during the heart of registration period (all my academic advising homies can collectively cringe here).

This includes:

• Suddenly becoming allergic to one of my chemo drugs
• Fluid collecting around my lungs. This was rectified by two horrible lung taps that yielded a total of ~ 1250 ML of fluid  between the right and left side.
• Encountering some intestinal pain as of Monday (that I refuse to let become another full blown bowel obstruction).

I’m not saying it’s the worst set of circumstances, but on a spectrum of “Annoying” to “FOR THE LOVE OF GOD, WHY?!” it was a solid “Can I please catch a break? PLEASE?”

More recently I’ve been physically so exhausted and with that I’ve fallen down the rabbit hole of intrusive thoughts which is never a fun place to be. It’s that place where you feel powerless over what is happening to you and I couldn’t seem to shake that sense of “yuck”. None of my favorite comforts seemed to help. I couldn’t focus enough for deep breathing or meditation. I couldn’t catch my breath after walking 10 feet so exercise wasn’t realistic. Ativan is great to quiet the mind temporarily but when you wake up, the overwhelming thoughts must still be dealt with.

Thank goodness for the plethora of “Christopher Robins” in my life because the only thing I could do that gave me any relief was cry and talk it out. I cried to the people that I love and sought some reassurance.

I didn’t want anyone to cheerlead or tell me that I’m brave or that it will all be okay. Because what is bravery, really, when you didn’t sign up for this? I just wanted validation that how I’m feeling in this moment really sucks.

My loved ones came through and as always helped to pull me up from the vortex of unproductive thoughts and back to more neutral state of being.

As bleh as I have been feeling, I continue to feel grateful for the people in my life that never waver. I know that you feel powerless too, even more so than me sometimes, and I would not be here four years later without that unconditional love.

I’m also grateful that we have another treatment option available before turning to more clinical trials. I will soon be starting a chemo infusion called Doxil that is typically used for people like me with recurrent ovarian cancer.

Pro’s:

• It is administered over 2 1/2 hours the first time and only one hour for each infusion after that. No long days in the chemo chair!
• It is administered once every four weeks. So basically I’ll only have chemo once per month. Woo!
• No predrugs (ex: Steroids, Benadryl, etc.)
• My hair will grow back 🙂

Possible Side Effects:

• Mild nausea/vomitting (although I don’t get the sense that it’s as bad or common as other treatments I’ve been on)
• Mouth sores
• Hand-foot syndrome- “Hand-foot syndrome appears on the palms of the hands and the soles of the feet as redness, swelling, rash, pain, tingling or burning sensations, or peeling skin. It appears after 2 or 3 treatment cycles, but may occur earlier.” Yikes.
• And per usual lowered white/red blood cell counts

We’ll see how it goes. Dr. Robison feels that in terms of quality of life, this is our best option right now.

Like I said earlier, I don’t have an impassioned statement that starts with “against all odds…” and ends with “AND I’LL BEAT THIS!”

Nah…

I’ll wrap this up with a reminder from my mother that we don’t know how the story ends. We just keep walking, one foot in front of the other. And we don’t necessarily know where we’re going. We just go. Taking every minute as it comes even when we are exhausted to our core.

What my tired yet hopeful self knows to be true on this four year anniversary….

Four years later, you still cry it out when the pain overwhelms you.

Four years later, you accept help when you know you only have so much to give.

Four years later, you hug your loved ones a little tighter and lean into that shining light.

Four years later, you try your hardest to absorb the pleasure in what most fulfills your soul.

Most importantly-

Four eventful and uncertain years later, the best case scenario holds true- you’re still here.