A problem that I have always had as long as I can remember is asking for something that I want/need. I couldn’t tell you why. In childhood I would see something at a store and just hope that my mom telepathically knew. Oddly enough my mama does have what I believe to be telepathy and can detect me in “crisis mode” from hundreds of miles away. WEIRD. (It’s a far better skill than knowing what barbie doll I liked in the store.)
In getting sick I was pretty much forced to tell people what I wanted or needed because for several months I was on “independence probation”. If I wanted to go from my bedroom to the living room, I needed my Dad to spot me so I didn’t tumble head first down the stairs (and I’ll be damned if I tumble and don’t stick the landing!). Now that I am back to normalcy and can do everything that I could before I got sick, I need to remember that the same rules apply. I must ask for what I need and what I want when it comes to my emotional wellbeing. This ties back to my last few entries about creating what you need. I am pleased to say that in a quest to meet other young people with similar stories, I not only helped to create a Providence meet-up, but it became an official Stupid Cancer Meet Up on the http://www.stupidcancer.org website!! So legitimate.
All I did was put my feelers out in the right forum and in a matter of 9 days the event came to be. I am really excited to meet other likeminded people with similar life experience. I think it will be a healthy step in the right direction in adapting to me new normal. I am glad that I asked for what I needed. (Shout out to Jocelyn that helped to make this an official event! And for being doctors appointments being spaced out to every 4 months!)
Speaking of new normal…
Many of you have told me that you have been following my friend Tony through his journey through http://effleukemia.com/
He just updated his blog for the first time in a few months and I am so proud to share that he finished in 14th for the NYC MS Ride and has officially registered for the 2014 NYC Triathlon. I am so proud of how far he has come in the midst of such dark times. All I have to say is Tony Lanza gives ZERO effs.